Almost four years later into Bexon’s scoliosis treatment and he we are in Utah getting my boy measured for a night time only brace!
From 10 heavy and difficult, but lifesaving Mehta/EDF plaster casts 24/7 to a light “Boston” style brace they actually make themselves here in Salt Lake City at the hospital (he’s had 3 of those, I think- a little over a year of almost full time bracing)—
To a slightly more severe looking brace called a Providence brace that is actually- catch the irony here- made in Boston! So the Boston style brace is made in Utah by our docs and the Providence is made no, not in Providence, but in Boston.
And so we wait. We’re here for almost a week. I’m sick Mommy. I have a pretty brutal virus that I caught from my kid that he caught at Kindergarten in the first 2 weeks. Party good time! Blech. It sucks.
I went to the zoo with Bex somehow today and walked for almost 2 hours in the blazing heat which means I am either a trying to be good mother or I’m completely off my rocker.
I almost wilted at the end. You know that feeling when you are nearly willing to lie down on the hot cement to sleep? Sad. Then we came back to our hotel room with groceries for our tiny fridge to find it wasn’t cold at all.
We called the repair man in the hotel and I tried to clean the room a bit, putting our breakfast dishes in the lobby on a tray and click! I locked myself out of the room with no shoes and no key. Sick.
Nick and Bex were at the pool, a loooonnnng walk. I couldn’t get into the pool room because you need a hotel key! So I knocked on the pool room window to try to get their attention and practically wept, they couldn’t hear me- and I had to go to the front desk and explain my no shoes vagrant policy.
Next in good times, I walked back into our room finally!- and the repair man was in here and gasped because the sick green gilled lady scared him.
Oh, did I mention that my husband and son went to a beach house party in Malibu last Saturday and I locked myself out of my house in L.A. in the punishing heat when I was supposed to be packing for this trip? I was sick that day, too. I’m kind of a mess this week.
But here is the good news- this is an easy medical trip! My baby is sooooo much better! It is heaven compared to the past trips. HEAVEN.
So I’ll take a little poor me cranky sick mommy any day over that terrible unknown of my child’s health outcome. We are incredibly lucky and incredibly blessed. I’ll stop complaining now Sorry.
Love has come to our rescue once again, thank God for Shriners- they have transformed my child’s entire life and future for the better. I’ll take death before anything else bad happening to my angel. Easy choice, that one. Just a vote for love.