Bex being measured at Shriners Hospital for a Providence brace.
Almost four years later into Bexon’s scoliosis treatment and he we are in Utah getting my boy measured for a night time only brace!
From 10 heavy and difficult, but lifesaving Mehta/EDF plaster casts 24/7 to a light “Boston” style brace they actually make themselves here in Salt Lake City at the hospital (he’s had 3 of those, I think- a little over a year of almost full time bracing)—
To a slightly more severe looking brace called a Providence brace that is actually- catch the irony here- made in Boston! So the Boston style brace is made in Utah by our docs and the Providence is made no, not in Providence, but in Boston.
And so we wait. We’re here for almost a week. I’m sick Mommy. I have a pretty brutal virus that I caught from my kid that he caught at Kindergarten in the first 2 weeks. Party good time! Blech. It sucks.
I went to the zoo with Bex somehow today and walked for almost 2 hours in the blazing heat which means I am either a trying to be good mother or I’m completely off my rocker.
I almost wilted at the end. You know that feeling when you are nearly willing to lie down on the hot cement to sleep? Sad. Then we came back to our hotel room with groceries for our tiny fridge to find it wasn’t cold at all.
We called the repair man in the hotel and I tried to clean the room a bit, putting our breakfast dishes in the lobby on a tray and click! I locked myself out of the room with no shoes and no key. Sick.
Nick and Bex were at the pool, a loooonnnng walk. I couldn’t get into the pool room because you need a hotel key! So I knocked on the pool room window to try to get their attention and practically wept, they couldn’t hear me- and I had to go to the front desk and explain my no shoes vagrant policy.
Next in good times, I walked back into our room finally!- and the repair man was in here and gasped because the sick green gilled lady scared him.
Oh, did I mention that my husband and son went to a beach house party in Malibu last Saturday and I locked myself out of my house in L.A. in the punishing heat when I was supposed to be packing for this trip? I was sick that day, too. I’m kind of a mess this week.
But here is the good news- this is an easy medical trip! My baby is sooooo much better! It is heaven compared to the past trips. HEAVEN.
So I’ll take a little poor me cranky sick mommy any day over that terrible unknown of my child’s health outcome. We are incredibly lucky and incredibly blessed. I’ll stop complaining now 
Sorry.
Love has come to our rescue once again, thank God for Shriners- they have transformed my child’s entire life and future for the better. I’ll take death before anything else bad happening to my angel. Easy choice, that one. Just a vote for love.
XOXO,
~ Heidi
Aw Heidi, it’s okay to moan a bit! Hope you feel better soon, Bex is looking very well and happy.
http://www.weezafish.blogspot.com
Oh man! That’s so awful! I hope you feel better soon! I was locked out of the house once in my robe with no phone.
I went out into the back yard to let the dog out and my husband came outside to kiss me goodbye for the day. He went back into the house and out of habit…you guess it…he locked the door! He took off for work and 5 minutes later I realized I was locked out of the house in my bathrobe. I went next door and no one was home but a pest control guy showed up and had a cell phone. I didn’t remember my husband’s number (who memorizes phone numbers these days?!) so I had to call information to get his work number and have them send him back home to let me in the house!
http://www.justshyofperfection.com
Just a vote for love.
Love it. I am so sorry that you are sick, but SOOOO happy that Bex is into a nighttime brace just in time to enjoy Kindergarten!!!!
Love your trip. Enjoy this moment. You guys have done what not a lot of other children in the past have been able to do. YOU guys beat this horrible thing. Man! Your biography is gonna be good.
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As for being sick, Somebody is either playing a really cruel joke on you or trying to teach you something… Endurance maybe? i don’t know, but I sure hope you feel better!
http://www.sober_mom.livejournal.com
LOVE! Mrs. Franklin…aka Sober mom
Oh Heidi-that sounds horrible to have happen, but i did laugh a bit, sorry! So glad Bexon is getting a nighttime only brace, so great, i know the road was long but so worth it! Keep swimming
What happens to him, that he need this in the first picture? When does he get his brace?
Hi Masi, Bex had 10 casts for Progressive Infantile Scoliosis and then wore a full time brace for over a year, he is now in a night time only brace and doing fantastic! thank you for asking. His full story is on this website, just click on the words Bexon’s Story at the top of the home page and you can see the X-rays before and after.
Hi Heidi Ferrer,
your site is interesting. Your son had a hard childhood. It is nice that you write about him.
What must he wear today?
Thank you, today he only wears a night time only brace called a Providence brace. Hopefully in a year or two he will be brace free! That is thanks to the Mehta/EDF casts first.