Or what Bexon calls “The Buzzy Bee.”
I have so many pictures to share from our trip but first I want to show you show some images of Bex’s last Mehta/EDF cast #10 being cut off, partially because this Mommy is in an emotional victory lap and very much so that these images will be out there on the Interweb to help another precious child and family.
Or hopefully many others. I believe in the butterfly wings that can set off a chain of events we may never know about.
Can I just say that I woke up this morning, the first morning back home in L.A. from our medical trip to Salt Lake City, and I woke up HAPPY.
You know that feeling where you wake up and you don’t want to get out of bed? Because being asleep is the best part of your day, because you are so stressed, anxious and/or depressed that you wish you could just stay asleep until it’s all over and everything is better?
I had that feeling all last week and worse. And it was terrible. And I’m not sad anymore. I feel a lightness of being. And I know that this feeling is not the beginning of happiness, this IS happiness.
Now away we go with Bex’s last cast being cut off! We’re gonna crack that crab, baby.
This is our friend Angie with the cast saw. Angie is the Care Coordinator of Shriners Hospital for Children in Salt Lake City (she’s a nurse as well.) Bex looks a little nervous but hopeful here. He’s in my arms and holding one of his Thomas trains for luck.
Angie has removed most of Bex’s casts herself and was instrumental in getting him in on a cancellation for his first cast, which probably saved our boy from painful spinal surgeries beginning at a young age. He runs into her arms when he sees her for a hug.
She is one of the heroes on Team Bexon. We love Angie forever.
My bunny is actually smiling here. Amazing. He has cried through many of these removals, but not through this last one, what a Big Boy!
The removals are not painful at all but the saw is loud and it causes a lot of vibration. It cannot cut skin, though, he is not in any of that kind of danger, it’s just scary to a little kid.
Probably would be to a grown up too but I wouldn’t know, I’m not one yet.
I love what the casts have done for him but I shudder to look at it here. It’s been on at this point for 4.5 months, it’s dirty and I was sick of it. That duct tape on the bottom was to avoid any little boy upstream peeing leaks that could have “wicked up” into the plaster of the cast.
He never smelled at all, though, we had it down and washed and removed the under t shirt regularly. That was key.
Daddy pulls it over his arms, it’s almost off!
Bye Bye cast!
“Whew!” Bex says, “I did it!”
And his back looks…normal. There’s still a small curve there we have to hold for a while in a brace, but his back looks like a normal, skinny little boy.
Hey, you would be skinny too if you’d been carrying around the equivalent of 30-35 pounds of plaster for 2 years and five months!
Come to think of it, I could stand to lose a few LBs…ummmmm…nah.
More stories from our trip to come soon! We are just so extremely grateful to Shriners Intermountain Hospital and their staff, especially to Dr. Jacques D’Astous, Mike Pond, Angie Livingston, the nurses and the wonderful ladies in the X-ray department. And I can’t leave out the kind anesthesiologists whose skill kept him alive.
Bar none, it continues to be the best medical experience we have ever had in our lives.
We love you all, and we thank you from the bottom of our hearts.
P.S. I have a whole series of photos to come on how the braces are made with our orthotist, Peter Springs. It’s fascinating, much like the casts, it’s where lifesaving medicine meets art.
P.P.S. If you haven’t read the beginning of Bexon’s Story, click here if you’d like to check it out.